What is INoEA?
INoEA is the international organization for all professionals working in the field of esophageal atresia and taking care of patients (neonates, infants, children, adolescents and adults) born with esophageal atresia.
This network was set up by health professionals and researchers working on esophageal atresia in February 2013 after the 2nd meeting on Esopahgeal Atresia held in Montreal, Canada in October 2012.
The general purpose of the INoEA is to promote scientific knowledge and better care in the field of Esophageal Atresia.
Why an international network?
EA is a rare disease (1:2500 births) and therefore requires large cohorts from different centres/countries to improve the understanding and the knowledge the disease and the care of the patients, to develop innovative approaches.
It is now well accepted that a multidisciplinary approach of EA including pediatric surgeons, neonatologists, geneticists, pediatric gastroenterologists, pediatric pulmunologists, general pediatricians, ENT, nutritionists, occupational therapists, speech therapists, psychologists, specialized nurses is the most efficient in this context.
Family support groups are active in many countries and have built international family support group federation (EAT in Europe and Australia).
Therefore, there is a need to gather all people interested and involved in the care and support of children and adults with esophageal atresia to share information and promote research in the field.
The INoEA shall endeavour to achieve its objectives through:
- Supporting the organization of regular International meetings on EA every 2 to 3 years
- Promoting international research efforts in the field of esophageal atresia.
- Promoting and helping to develop mulcenter studies and collaboration between centers
- Promoting and supporting consensus statements and clinical guidelines on esophageal attresia
To advance its objectives, INoEA cooperates with patient support groups and other parties seeking to improve the lives of people living with EA